Cloud-Based Rare Disease Family Registry Global Market Report 2025

Published Oct 23, 2025

Length 250 Pages

SKU # BRC20492409

Description

Cloud-Based Rare Disease Family Registry Global Market Report 2025 from The Business Research Company provides strategists, marketers and senior management with the critical information they need to assess the market.

This report focuses on cloud-based rare disease family registry market which is experiencing strong growth. The report gives a guide to the trends which will be shaping the market over the next ten years and beyond.

Reasons to Purchase

Gain a truly global perspective with the most comprehensive report available on this market covering 15 geographies.
Assess the impact of key macro factors such as geopolitical conflicts, trade policies and tariffs, post-pandemic supply chain realignment, inflation and interest rate fluctuations, and evolving regulatory landscapes.
Create regional and country strategies on the basis of local data and analysis.
Identify growth segments for investment.
Outperform competitors using forecast data and the drivers and trends shaping the market.
Understand customers based on the latest market shares.
Benchmark performance against key competitors.
Suitable for supporting your internal and external presentations with reliable high quality data and analysis
Report will be updated with the latest data and delivered to you within 2-3 working days of order along with an Excel data sheet for easy data extraction and analysis.
All data from the report will also be delivered in an excel dashboard format.

Description:

Where is the largest and fastest growing market for cloud-based rare disease family registry ? How does the market relate to the overall economy, demography and other similar markets? What forces will shape the market going forward, including technological disruption, regulatory shifts, and changing consumer preferences? The cloud-based rare disease family registry market global report from the Business Research Company answers all these questions and many more.

The report covers market characteristics, size and growth, segmentation, regional and country breakdowns, competitive landscape, market shares, trends and strategies for this market. It traces the market’s historic and forecast market growth by geography.

The market characteristics section of the report defines and explains the market.
The market size section gives the market size ($b) covering both the historic growth of the market, and forecasting its development.
The forecasts are made after considering the major factors currently impacting the market. These include:
The forecasts are made after considering the major factors currently impacting the market. These include the technological advancements such as AI and automation, Russia-Ukraine war, trade tariffs (government-imposed import/export duties), elevated inflation and interest rates.
Market segmentations break down the market into sub markets.
The regional and country breakdowns section gives an analysis of the market in each geography and the size of the market by geography and compares their historic and forecast growth.
The competitive landscape chapter gives a description of the competitive nature of the market, market shares, and a description of the leading companies. Key financial deals which have shaped the market in recent years are identified.
The trends and strategies section analyses the shape of the market as it emerges from the crisis and suggests how companies can grow as the market recovers.

Scope

Markets Covered:1) By Component: Software; Services

2) By Deployment Mode: Public Cloud; Private Cloud; Hybrid Cloud

3) By Application: Patient Data Management; Research; Clinical Trials; Genetic Data Collection; Other Applications

4) By End-User: Hospitals And Clinics; Research Institutes; Pharmaceutical And Biotechnology Companies; Patient Advocacy Groups; Other End-Users

Subsegments:

1) By Software: Electronic Data Capture; Data Management Platform; Analytics And Reporting Tools; Patient Engagement Tools; Clinical Trial Management System

2) By Services: Implementation And Integration; Training And Support; Data Hosting And Security; Consulting Services; Maintenance And Upgrades

Companies Mentioned: Thermo Fisher Scientific Inc.; IQVIA Holdings Inc.; ICON plc; Syneos Health Inc.; Parexel International Corp.; Medidata Solutions Inc.; FIGMD Inc.; OM1 Inc.; Mission Health Labs Inc.; TREAT-NMD Global Registries Platform; Seqster PDM Inc.; ArborMetrix Inc.; OpenClinica LLC; Pulse Infoframe Inc.; Oracle Healthcare Pvt. Ltd.; QuesGen Systems Inc.; FTD Disorders Registry; Castor LLC; Data Registry Services LLC; Fibrolamellar Registry; Rare Central

Countries: Australia; Brazil; China; France; Germany; India; Indonesia; Japan; Russia; South Korea; UK; USA; Canada; Italy; Spain

Regions: Asia-Pacific; Western Europe; Eastern Europe; North America; South America; Middle East; Africa

Time Series: Five years historic and ten years forecast.

Data: Ratios of market size and growth to related markets, GDP proportions, expenditure per capita,

Data Segmentations: country and regional historic and forecast data, market share of competitors, market segments.

Sourcing and Referencing: Data and analysis throughout the report is sourced using end notes.

Delivery Format: PDF, Word and Excel Data Dashboard.

Please Note: Report will be updated with the latest data and delivered to you within 3-5 working days of order.

1. Executive Summary
2. Cloud-Based Rare Disease Family Registry Market Characteristics
3. Cloud-Based Rare Disease Family Registry Market Trends And Strategies
4. Cloud-Based Rare Disease Family Registry Market - Macro Economic Scenario Including The Impact Of Interest Rates, Inflation, Geopolitics, Trade Wars and Tariffs, And Covid And Recovery On The Market: 4.1. Supply Chain Impact from Tariff War & Trade Protectionism
5. Global Cloud-Based Rare Disease Family Registry Growth Analysis And Strategic Analysis Framework: 5.1. Global Cloud-Based Rare Disease Family Registry PESTEL Analysis (Political, Social, Technological, Environmental and Legal Factors, Drivers and Restraints); 5.2. Analysis Of End Use Industries; 5.3. Global Cloud-Based Rare Disease Family Registry Market Growth Rate Analysis; 5.4. Global Cloud-Based Rare Disease Family Registry Historic Market Size and Growth, 2019 - 2024, Value ($ Billion); 5.5. Global Cloud-Based Rare Disease Family Registry Forecast Market Size and Growth, 2024 - 2029, 2034F, Value ($ Billion); 5.6. Global Cloud-Based Rare Disease Family Registry Total Addressable Market (TAM)
6. Cloud-Based Rare Disease Family Registry Market Segmentation: 6.1. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Software; Services; 6.2. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Public Cloud; Private Cloud; Hybrid Cloud; 6.3. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Patient Data Management; Research; Clinical Trials; Genetic Data Collection; Other Applications; 6.4. Global Cloud-Based Rare Disease Family Registry Market, Segmentation By End-User, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Hospitals And Clinics; Research Institutes; Pharmaceutical And Biotechnology Companies; Patient Advocacy Groups; Other End-Users; 6.5. Global Cloud-Based Rare Disease Family Registry Market, Sub-Segmentation Of Software, By Type, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Electronic Data Capture; Data Management Platform; Analytics And Reporting Tools; Patient Engagement Tools; Clinical Trial Management System; 6.6. Global Cloud-Based Rare Disease Family Registry Market, Sub-Segmentation Of Services, By Type, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; Implementation And Integration; Training And Support; Data Hosting And Security; Consulting Services; Maintenance And Upgrades
7. Cloud-Based Rare Disease Family Registry Market Regional And Country Analysis: 7.1. Global Cloud-Based Rare Disease Family Registry Market, Split By Region, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 7.2. Global Cloud-Based Rare Disease Family Registry Market, Split By Country, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
8. Asia-Pacific Cloud-Based Rare Disease Family Registry Market: 8.1. Asia-Pacific Cloud-Based Rare Disease Family Registry Market Overview; Region Information, Market Information, Background Information, Government Initiatives, Regulations, Regulatory Bodies, Major Associations, Taxes Levied, Corporate Tax Structure, Investments, Major Companies; 8.2. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 8.3. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 8.4. Asia-Pacific Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
9. China Cloud-Based Rare Disease Family Registry Market: 9.1. China Cloud-Based Rare Disease Family Registry Market Overview; 9.2. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion; 9.3. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion; 9.4. China Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F,$ Billion
10. India Cloud-Based Rare Disease Family Registry Market: 10.1. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 10.2. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 10.3. India Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
11. Japan Cloud-Based Rare Disease Family Registry Market: 11.1. Japan Cloud-Based Rare Disease Family Registry Market Overview; 11.2. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 11.3. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 11.4. Japan Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
12. Australia Cloud-Based Rare Disease Family Registry Market: 12.1. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 12.2. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 12.3. Australia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
13. Indonesia Cloud-Based Rare Disease Family Registry Market: 13.1. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 13.2. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 13.3. Indonesia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
14. South Korea Cloud-Based Rare Disease Family Registry Market: 14.1. South Korea Cloud-Based Rare Disease Family Registry Market Overview; 14.2. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 14.3. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 14.4. South Korea Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
15. Western Europe Cloud-Based Rare Disease Family Registry Market: 15.1. Western Europe Cloud-Based Rare Disease Family Registry Market Overview; 15.2. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 15.3. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 15.4. Western Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
16. UK Cloud-Based Rare Disease Family Registry Market: 16.1. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 16.2. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 16.3. UK Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
17. Germany Cloud-Based Rare Disease Family Registry Market: 17.1. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 17.2. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 17.3. Germany Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
18. France Cloud-Based Rare Disease Family Registry Market: 18.1. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 18.2. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 18.3. France Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
19. Italy Cloud-Based Rare Disease Family Registry Market: 19.1. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 19.2. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 19.3. Italy Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
20. Spain Cloud-Based Rare Disease Family Registry Market: 20.1. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 20.2. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 20.3. Spain Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
21. Eastern Europe Cloud-Based Rare Disease Family Registry Market: 21.1. Eastern Europe Cloud-Based Rare Disease Family Registry Market Overview; 21.2. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 21.3. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 21.4. Eastern Europe Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
22. Russia Cloud-Based Rare Disease Family Registry Market: 22.1. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 22.2. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 22.3. Russia Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
23. North America Cloud-Based Rare Disease Family Registry Market: 23.1. North America Cloud-Based Rare Disease Family Registry Market Overview; 23.2. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 23.3. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 23.4. North America Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
24. USA Cloud-Based Rare Disease Family Registry Market: 24.1. USA Cloud-Based Rare Disease Family Registry Market Overview; 24.2. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 24.3. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 24.4. USA Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
25. Canada Cloud-Based Rare Disease Family Registry Market: 25.1. Canada Cloud-Based Rare Disease Family Registry Market Overview; 25.2. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 25.3. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 25.4. Canada Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
26. South America Cloud-Based Rare Disease Family Registry Market: 26.1. South America Cloud-Based Rare Disease Family Registry Market Overview; 26.2. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 26.3. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 26.4. South America Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
27. Brazil Cloud-Based Rare Disease Family Registry Market: 27.1. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 27.2. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 27.3. Brazil Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
28. Middle East Cloud-Based Rare Disease Family Registry Market: 28.1. Middle East Cloud-Based Rare Disease Family Registry Market Overview; 28.2. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 28.3. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 28.4. Middle East Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
29. Africa Cloud-Based Rare Disease Family Registry Market: 29.1. Africa Cloud-Based Rare Disease Family Registry Market Overview; 29.2. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Component, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 29.3. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Deployment Mode, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion; 29.4. Africa Cloud-Based Rare Disease Family Registry Market, Segmentation By Application, Historic and Forecast, 2019-2024, 2024-2029F, 2034F, $ Billion
30. Cloud-Based Rare Disease Family Registry Market Competitive Landscape And Company Profiles: 30.1. Cloud-Based Rare Disease Family Registry Market Competitive Landscape; 30.2. Cloud-Based Rare Disease Family Registry Market Company Profiles; 30.2.1. Thermo Fisher Scientific Inc. Overview, Products and Services, Strategy and Financial Analysis; 30.2.2. IQVIA Holdings Inc. Overview, Products and Services, Strategy and Financial Analysis; 30.2.3. ICON plc Overview, Products and Services, Strategy and Financial Analysis; 30.2.4. Syneos Health Inc. Overview, Products and Services, Strategy and Financial Analysis; 30.2.5. Parexel International Corp. Overview, Products and Services, Strategy and Financial Analysis
31. Cloud-Based Rare Disease Family Registry Market Other Major And Innovative Companies: 31.1. Medidata Solutions Inc.; 31.2. FIGMD Inc.; 31.3. OM1 Inc.; 31.4. Mission Health Labs Inc.; 31.5. TREAT-NMD Global Registries Platform; 31.6. Seqster PDM Inc.; 31.7. ArborMetrix Inc.; 31.8. OpenClinica LLC; 31.9. Pulse Infoframe Inc.; 31.10. Oracle Healthcare Pvt. Ltd.; 31.11. QuesGen Systems Inc.; 31.12. FTD Disorders Registry; 31.13. Castor LLC; 31.14. Data Registry Services LLC; 31.15. Fibrolamellar Registry
32. Global Cloud-Based Rare Disease Family Registry Market Competitive Benchmarking And Dashboard
33. Key Mergers And Acquisitions In The Cloud-Based Rare Disease Family Registry Market
34. Recent Developments In The Cloud-Based Rare Disease Family Registry Market
35. Cloud-Based Rare Disease Family Registry Market High Potential Countries, Segments and Strategies: 35.1 Cloud-Based Rare Disease Family Registry Market In 2029 - Countries Offering Most New Opportunities; 35.2 Cloud-Based Rare Disease Family Registry Market In 2029 - Segments Offering Most New Opportunities; 35.3 Cloud-Based Rare Disease Family Registry Market In 2029 - Growth Strategies; 35.3.1 Market Trend Based Strategies; 35.3.2 Competitor Strategies
36. Appendix: 36.1. Abbreviations; 36.2. Currencies; 36.3. Historic And Forecast Inflation Rates; 36.4. Research Inquiries; 36.5. The Business Research Company; 36.6. Copyright And Disclaimer

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