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The Complete Directory for People with Chronic Illness 2009/10 Edition

Published by: Grey House Publishing Inc

Published: Apr. 1, 2009 - 1200 Pages


Table of Contents


Preface

Introduction

Chronic Illness - Body System Chart

Transition from Childhood to Adulthood with Chronic Illness

Bioterrorism

Pandemic Flu

Addison’s Disease

Aging

AIDS/HIV

Alcoholism, see Substance Abuse

Allergies

Alzheimer’s Disease

Amyotrophic Lateral Sclerosis

Anorexia, see Eating Disorders

Arthritis

Asthma

Ataxia

Attention Deficit Hyperactivity Disorder

Autistic Spectrum Disorders

Birth Defects

Blindness, see Visual Impairments

Brain Tumors

Bulimia, see Eating Disorders

Cancer

Carpal Tunnel Syndrome

Celiac Disease

Cerebral Palsy

Chronic Bronchitis, see Lung Disease

Chronic Fatigue Syndrome

Chronic Obstructive Pulmonary Disorder (COPD), see Lung Disease

Chronic Pain

Congenital Heart Disease

Cooley’s Anemia (Thalassemia)

Crohn’s Disease

Cystic Fibrosis

Deafness, see Hearing Impairments

Diabetes Mellitus

Down Syndrome

Drug Abuse, see Substance Abuse

Eating Disorders (Anorexia Nervosa, Bulimia)

Endometriosis

Eczema, see Skin Disorders

Fabry Disease

Fibromyalgia Syndrome

Gastrointestinal Disorders

Gaucher’s Disease

Geriatric Disorders, see Aging, Alzheimer’s Disease

Growth Disorders

Head Injuries

Hearing Impairment

Heart Disease

Hemophilia

Hepatitis

Hydrocephalus

Hypertension

Impotence

Incontinence

Infertility

Kidney Disease

Liver Disease

Lung Disease

Lupus Erythematosus

Lyme Disease, see Tick-Borne Disease

Mental Illness/General

Mental Illness/Depression

Mental Illness/Schizophrenia

Migraine

Multiple Sclerosis

Muscular Dystrophy

Myasthenia Gravis

Neurofibromatosis

Obesity

Obsessive Compulsive Disorder, see Mental Illness

Osteogenesis Imperfecta

Osteoporosis

Paget’s Disease

Parkinson Disease

Post-Polio Disease

Prader-Willi Syndrome

Psoriasis, see Skin Disorders

Raynaud’s Disease

Retinitis Pigmentosa, see Visual Impairment

Sarcoidosis

Scleroderma

Scoliosis

Seizure Disorders

Sexually Transmitted Diseases

Sickle Cell Disease

Sjogren’s Syndrome

Skin Disorders

Sleep Disorders

Spina Bifida

Spinal Cord Injuries

Stroke

Substance Abuse

Sudden Infant Death Syndrome

Tay-Sachs Disease

Tick-Borne Disease

Tourette Syndrome

Transplant-Related Conditions

Tuberculosis

Tuberous Sclerosis

Turner Syndrome

Ulcerative Colitis

Visual Impairment

War Syndromes

Wilson’s Disease

General Resources

Wish Foundations

Death and Bereavement



Entry Index



Geographic Index

Abstract

This directory provides a comprehensive overview of the support services and information resources available for people diagnosed with a chronic illness. It details the wide range of organizations, educational materials, books, newsletters, web sites, periodicals and databases that address 88 specific chronic illnesses.

Until now, concerned individuals have had to rely on local health resource centers or libraries and organizations, whose information can be strong in one area and weak in another.

With The Complete Directory for People with Chronic Illness, librarians, health resource centers, physicians and social workers have a comprehensive information source. This directory helps make it possible for them to provide the critical and immediate information that is so necessary when helping patients and their families deal with the stress of a chronic illness. The patient and the patient's family can then proceed in developing an informed support system that can help them deal with the impact that such a diagnosis can have and give them the resources that will keep them informed about the latest research. For the patient and family already dealing with a chronic illness, this directory will offer new sources of support and information.

The 80 + chronic illnesses that are addressed in this new directory were developed with the assistance of physicians and medical personnel. Each chronic condition has its own chapter and contains a brief description of the illness. The Descriptions are followed by subchapters which include National Associations & Agencies, State Associations & Agencies, Libraries, Research Centers, Reference Books, Children's Books, Magazines, Newsletters, Pamphlets, Web sites, Support Groups & Hotlines and Videos. In addition, there is a chapter on Death and Bereavement, as well as one for the Wish Foundations that help "wishes" come true for terminally or chronically ill children.

This directory is an important resource for health care professionals, the collections of hospital and health care libraries, as well as an invaluable tool for people with a chronic illness and their support networks.

Please Note: This publisher is in a remote location. As such, it may take up to 4 business days before a hard copy order is able to be shipped from this location.

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